CC-TDI Study.

Until early 2020, there were no commissioned studies on SEF. But we were able to help change that. In January of 2020, a SEF-specific study was funded and implemented at cc-TDI in Portland, Oregon! The initial aims of the project are to create a SEF patient registry, to collect, bank and test cell lines and live tissue, and to generate xenograft (mouse) models in order to simultaneously conduct active drug studies. The ultimate goal will be to take these results to actual human trials as soon as possible. We are now working to connect with other SEF patients (adults and children) and their oncology teams to collect tissue, compare genetic testing results and treatment histories, and to get started on finding a cure.

Read more below.